When Illness Becomes a Dragon
Spoonie Challenges / chronic fatigue / Body positivity / Living fully / Myalgic Encephalomyalitis

When Illness Becomes a Dragon

I feel that the image of an unruly beast of fierce proportions best conveys just what place incapacitating chronic illness occupies in one’s life. This beastie is like a tantrum-prone toddler that keeps you in a state of constant vigilance for fear  it will bring you down so low, getting back up might take longer … Continue reading

“Winning” NaNoWriMo as a Spoonie
chronic fatigue / chronic pain / Fibromyalgia / mental health / Spoonie Challenges / Writing journey

“Winning” NaNoWriMo as a Spoonie

So, yesterday I got this fancy thing: This November I participated in my first-ever National Novel Writing Month (NaNoWriMo) adventure. Now, I’ll confess right away that I have not been a fan of the concept for years. The win-or-lose thing did not appeal to me (because writing 35,000 words in a month instead of 50,000 … Continue reading

Spoonie Error 404
chronic fatigue / chronic pain / poetry / Spoonie Challenges

Spoonie Error 404

Lately, I’ve seen a co-opting of the phrase ‘I’m out of spoons’, by people who are not dealing with disabilities and/or chronic illnesses. To be frank, I wish this would stop. I reckon these people don’t know what it’s truly like to have to chose between washing yourself and making your meal. That’s the way it is when you are a spoonie. Some days you might have so little stamina, you must make a choice between eating and bathing. Other times, you might think you have enough spoons to get through the day when suddenly you realise no more spoons exist, and the great cash happens. It’s awful, to be honest.
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