Super Spoonie Mom!
chronic fatigue / chronic pain / Fibromyalgia / Living fully / Parenting / Spoonie Challenges / Writing journey

Super Spoonie Mom!

Super Spoonie Mom. Yeah, that’s me. I have chronic pain and a fatigue that has never gone away. I’m also the mother of a two-year-old who, I swear, is nuclear powered. Most kids, when they have run around for three hours, crash and sleep. NOT THIS CHILD. Nope. She keeps going.  If I could only … Continue reading

Dickie Boy and a Sense of Inevitability
Accessibility / chronic fatigue / chronic pain / Getting support / Spoonie Challenges / Writing journey

Dickie Boy and a Sense of Inevitability

I love genealogy, especially since I discovered my late father descended from English kings, including Richard III—although I did have to delete his father’s line in 2012 (see article from The Guardian). This is relevant because my father’s family includes a lot of people with scoliosis, just like Richard III, or as I call him now, … Continue reading

I’m not F**king Brave
Author image / Body positivity / Cerebral Palsy / chronic fatigue / chronic pain / Living fully / Multiple Sclerosis / Represention / Spoonie Challenges / Writing journey

I’m not F**king Brave

Just to set the record straight, I’m not brave, okay? I live with spastic cerebral palsy (CP) and relapse-and-remitting multiple sclerosis (MS). I can’t count the number of people who have called me brave. I always smile and nod when they say this, but the truth is that bravery has nothing to do with it. … Continue reading

How do you make *this* sexy? Why representation in fiction matters. (Part I)
Body positivity / Cerebral Palsy / chronic pain / Represention / sex / Sexah / Why Representation Matters

How do you make *this* sexy? Why representation in fiction matters. (Part I)

“How do you make this sexy?” a reader asked me, gesturing to her wheelchair in the middle of one of my sex education Q&A sessions. The question stumped me because the answer isn’t an easy one. The short version is: You don’t. There isn’t anything inherently sexy about using a wheelchair or a walker, or having … Continue reading

“Winning” NaNoWriMo as a Spoonie
chronic fatigue / chronic pain / Fibromyalgia / mental health / Spoonie Challenges / Writing journey

“Winning” NaNoWriMo as a Spoonie

So, yesterday I got this fancy thing: This November I participated in my first-ever National Novel Writing Month (NaNoWriMo) adventure. Now, I’ll confess right away that I have not been a fan of the concept for years. The win-or-lose thing did not appeal to me (because writing 35,000 words in a month instead of 50,000 … Continue reading