I’m Not F**king Brave
Author image / Body positivity / Cerebral Palsy / chronic fatigue / chronic pain / Living fully / Multiple Sclerosis / Represention / Spoonie Challenges / Writing journey

I’m Not F**king Brave

Just to set the record straight, I’m not brave, okay? I live with spastic cerebral palsy (CP) and relapse-and-remitting multiple sclerosis (MS). I can’t count the number of people who have called me brave. I always smile and nod when they say this, but the truth is that bravery has nothing to do with it. … Continue reading

How do you make *this* sexy? Why representation in fiction matters.
Body positivity / Cerebral Palsy / chronic pain / Represention / sex / Sexah / Why Representation Matters

How do you make *this* sexy? Why representation in fiction matters.

“How do you make this sexy?” a reader asked me, gesturing to her wheelchair in the middle of one of my sex education Q&A sessions. The question stumped me because the answer isn’t an easy one. The short version is: You don’t. There isn’t anything inherently sexy about using a wheelchair or a walker, or having … Continue reading

“Winning” NaNoWriMo as a Spoonie
chronic fatigue / chronic pain / Fibromyalgia / mental health / Spoonie Challenges / Writing journey

“Winning” NaNoWriMo as a Spoonie

So, yesterday I got this fancy thing: This November I participated in my first-ever National Novel Writing Month (NaNoWriMo) adventure. Now, I’ll confess right away that I have not been a fan of the concept for years. The win-or-lose thing did not appeal to me (because writing 35,000 words in a month instead of 50,000 … Continue reading

The ‘new’ me. Can I function in the world at my own snail’s pace?
chronic pain / Migraines / Spoonie Challenges / Working / Writing journey

The ‘new’ me. Can I function in the world at my own snail’s pace?

Let’s discuss tomorrow, today, and right now. Tomorrow I am going to take the first step towards getting some (very) part-time work by being interviewed at the local Vocational Rehabilitation office. Compared to the majority of the people they see, my Bachelor’s degree, my year of graduate school, various successful professions, and being a business … Continue reading