Super Spoonie Mom!
chronic fatigue / chronic pain / Fibromyalgia / Living fully / Parenting / Spoonie Challenges / Writing journey

Super Spoonie Mom!

Super Spoonie Mom. Yeah, that’s me. I have chronic pain and a fatigue that has never gone away. I’m also the mother of a two-year-old who, I swear, is nuclear powered. Most kids, when they have run around for three hours, crash and sleep. NOT THIS CHILD. Nope. She keeps going.  If I could only … Continue reading

All the Parts of Me
Fibromyalgia / Getting support / Living fully / ME/CFS / Myalgic Encephalomyalitis / Spoonie Challenges / Writing journey

All the Parts of Me

I don’t know about you, but many doctors have told me that besides my having myalgic encephalomyelitis (ME), I’m in good health. My primary care doctor prescribes drugs for general pain, muscle spasms, severe headaches, allergic eyes, dry eyes, breathing difficulties, dry mucus membranes, and add to that anti-inflammatory meds and the list goes on. … Continue reading

I’m not F**king Brave
Author image / Body positivity / Cerebral Palsy / chronic fatigue / chronic pain / Living fully / Multiple Sclerosis / Represention / Spoonie Challenges / Writing journey

I’m not F**king Brave

Just to set the record straight, I’m not brave, okay? I live with spastic cerebral palsy (CP) and relapse-and-remitting multiple sclerosis (MS). I can’t count the number of people who have called me brave. I always smile and nod when they say this, but the truth is that bravery has nothing to do with it. … Continue reading

When Illness Becomes a Dragon
Body positivity / chronic fatigue / Living fully / Myalgic Encephalomyalitis / Spoonie Challenges

When Illness Becomes a Dragon

I feel that the image of an unruly beast of fierce proportions best conveys just what place incapacitating chronic illness occupies in one’s life. This beastie is like a tantrum-prone toddler that keeps you in a state of constant vigilance for fear  it will bring you down so low, getting back up might take longer … Continue reading