I’m not F**king Brave
Author image / Body positivity / Cerebral Palsy / chronic fatigue / chronic pain / Living fully / Multiple Sclerosis / Representing ourselves / Spoonie Challenges / Writing journey

I’m not F**king Brave

Just to set the record straight, I’m not brave, okay? I live with spastic cerebral palsy (CP) and relapse-and-remitting multiple sclerosis (MS). I can’t count the number of people who have called me brave. I always smile and nod when they say this, but the truth is that bravery has nothing to do with it. … Continue reading

Doing ‘It’ with a Disability
Cerebral Palsy / Multiple Sclerosis / sex / Sexah / Spoonie Challenges / Writing journey

Doing ‘It’ with a Disability

The first piece of writing advice that I was given was: Write what you know.   Throughout my twenty years as a writer, I’ve happily ignored that advice. I’ve written fantasy novels, horror stories, and countless short stories and poems. And throughout all of them, I wrote only what pleased me, what I felt called … Continue reading

“Get over it. You’re a Beta now.”
Multiple Sclerosis / Spoonie Challenges / Writing journey

“Get over it. You’re a Beta now.”

“Get over it.” “You need to move past this.” “Accept it.” “This is the new you, Bob.” These are the tough but loving—albeit difficult—words I’ve been hearing for the last fourteen months from my family, friends, and doctors. This, after a severe Multiple Sclerosis attack paralyzed the right side of my body, damaged my brain … Continue reading