Do you have a fatigue budget?
chronic fatigue / Living fully / mental health / Spoonie Challenges / Working

Do you have a fatigue budget?

The other day, a buddy of mine and I were discussing how the slightest medical procedures or even routine vaccinations can greatly impact our chronic fatigue symptoms. We can lose spoons just like POOF! I told my friend that having more time alloted to their fatigue budget would really help. Then I explained how in … Continue reading

Spoon Stealers, Week 3: The Unicorn Who Farted Sparkles
Cerebral Palsy / Living fully / mental health / Multiple Sclerosis / Spoon Stealers / Spoonie Challenges

Spoon Stealers, Week 3: The Unicorn Who Farted Sparkles

I am my own worst enemy. I tend to spiral downwards when issues get to me, and I lose myself in the shadowy labyrinth. I know its walls very well and have wandered them for so long, they are a second home to me now. Looking back, I see spoons littering the dirt floor of … Continue reading

Spoon Stealers, Week 2: We will steal your spoons. First, fill out this consent form.
Autism / Spoon Stealers / Spoonie Challenges

Spoon Stealers, Week 2: We will steal your spoons. First, fill out this consent form.

For far too many disabled people, finding services—let alone accessing them—is a difficult-to-impossible task. When one does find them, then attending appointments, going for tests, and so on, sucks up even more spoons. In almost every case, we have to sign forms giving the provider permission to steal our spoons in whatever way. ODSP wants … Continue reading

Featured SpAN Author: Talia Johnson
Autism / Featured Author / Fibromyalgia / Spoonie Challenges / Writing journey

Featured SpAN Author: Talia Johnson

Talia Johnson is a multi-faceted woman who is transgender, autistic, Jewish, queer, and more than the sum of her parts. Her work centres on bridging faith and queer communities, facilitating workshops, educating, speaking, writing, one-on-one coaching, counselling, and mentoring. She is a queer and trans sensitivity editor for writers and publishers. Talia’s most recent poem, Holy Love, appearS … Continue reading