Super Spoonie Mom!
chronic fatigue / chronic pain / Fibromyalgia / Living fully / Parenting / Spoonie Challenges / Writing journey

Super Spoonie Mom!

Super Spoonie Mom. Yeah, that’s me. I have chronic pain and a fatigue that has never gone away. I’m also the mother of a two-year-old who, I swear, is nuclear powered. Most kids, when they have run around for three hours, crash and sleep. NOT THIS CHILD. Nope. She keeps going.  If I could only … Continue reading

Dickie Boy and a Sense of Inevitability
Accessibility / chronic fatigue / chronic pain / Getting support / Spoonie Challenges / Writing journey

Dickie Boy and a Sense of Inevitability

I love genealogy, especially since I discovered my late father descended from English kings, including Richard III—although I did have to delete his father’s line in 2012 (see article from The Guardian). This is relevant because my father’s family includes a lot of people with scoliosis, just like Richard III, or as I call him now, … Continue reading

All the Parts of Me
Fibromyalgia / Getting support / Living fully / ME/CFS / Myalgic Encephalomyalitis / Spoonie Challenges / Writing journey

All the Parts of Me

I don’t know about you, but many doctors have told me that besides my having myalgic encephalomyelitis (ME), I’m in good health. My primary care doctor prescribes drugs for general pain, muscle spasms, severe headaches, allergic eyes, dry eyes, breathing difficulties, dry mucus membranes, and add to that anti-inflammatory meds and the list goes on. … Continue reading

I’m not F**king Brave
Author image / Body positivity / Cerebral Palsy / chronic fatigue / chronic pain / Living fully / Multiple Sclerosis / Represention / Spoonie Challenges / Writing journey

I’m not F**king Brave

Just to set the record straight, I’m not brave, okay? I live with spastic cerebral palsy (CP) and relapse-and-remitting multiple sclerosis (MS). I can’t count the number of people who have called me brave. I always smile and nod when they say this, but the truth is that bravery has nothing to do with it. … Continue reading

Featured SpAN Author: Talia Johnson
Autism / Featured Author / Fibromyalgia / Spoonie Challenges / Writing journey

Featured SpAN Author: Talia Johnson

Talia Johnson is a multi-faceted woman who is transgender, autistic, Jewish, queer, and more than the sum of her parts. Her work centres on bridging faith and queer communities, facilitating workshops, educating, speaking, writing, one-on-one coaching, counselling, and mentoring. She is a queer and trans sensitivity editor for writers and publishers. Talia’s most recent poem, Holy Love, will … Continue reading