Remembering I’m Disabled
chronic fatigue / chronic pain / Fibromyalgia / Spoonie Challenges / Working

Remembering I’m Disabled

I use a mobility device. I’m on the autism spectrum. I manage mental illness, chronic pain, and chronic fatigue. I’m the creator of the Spoonies Authors Network and co-editor of the Nothing Without Us anthology. A huge part of my existence is now about promoting the works and voices of disabled/Deaf/neurodiverse folks and those who … Continue reading

Do you have a fatigue budget?
chronic fatigue / Living fully / mental health / Spoonie Challenges / Working

Do you have a fatigue budget?

The other day, a buddy of mine and I were discussing how the slightest medical procedures or even routine vaccinations can greatly impact our chronic fatigue symptoms. We can lose spoons just like POOF! I told my friend that having more time alloted to their fatigue budget would really help. Then I explained how in … Continue reading

When Illness Becomes a Dragon
Body positivity / chronic fatigue / Living fully / Myalgic Encephalomyalitis / Spoonie Challenges

When Illness Becomes a Dragon

I feel that the image of an unruly beast of fierce proportions best conveys just what place incapacitating chronic illness occupies in one’s life. This beastie is like a tantrum-prone toddler that keeps you in a state of constant vigilance for fear  it will bring you down so low, getting back up might take longer … Continue reading