Confessions of a Reluctant Spoonie
Autism / Fibromyalgia / Representing ourselves / Spoonie Challenges / Writing journey

Confessions of a Reluctant Spoonie

Forgive me, Father, for I have synonymed. Oh, wait, I’m not Catholic or Anglican (both traditions have the sacrament of Confession), I’m Jewish. So, that sort of confession isn’t appropriate. Yet, confession is an appropriate term for where I’m at with being a spoonie. The evidence is there in report cards and in what has … Continue reading

Spoonie Error 404
chronic fatigue / chronic pain / poetry / Spoonie Challenges

Spoonie Error 404

Lately, I’ve seen a co-opting of the phrase ‘I’m out of spoons’, by people who are not dealing with disabilities and/or chronic illnesses. To be frank, I wish this would stop. I reckon these people don’t know what it’s truly like to have to chose between washing yourself and making your meal. That’s the way it is when you are a spoonie. Some days you might have so little stamina, you must make a choice between eating and bathing. Other times, you might think you have enough spoons to get through the day when suddenly you realise no more spoons exist, and the great cash happens. It’s awful, to be honest.
Continue reading

Everyone’s writing, and I’m all like…
Fibromyalgia / Spoonie Challenges / Writing journey

Everyone’s writing, and I’m all like…

Ever feel like everyone’s writing but you? I do. Now that I’m published and have all these new writer friends and acquaintances on social media, I’m able to read updates about their word journeys. To me it feels like they’re constantly writing. Meanwhile, I’m all like, Yeah, I need to lie down now.  After working intensely on Life in … Continue reading