Do you have a fatigue budget?
chronic fatigue / Living fully / mental health / Spoonie Challenges / Working

Do you have a fatigue budget?

The other day, a buddy of mine and I were discussing how the slightest medical procedures or even routine vaccinations can greatly impact our chronic fatigue symptoms. We can lose spoons just like POOF! I told my friend that having more time alloted to their fatigue budget would really help. Then I explained how in … Continue reading

You must write every day—my favourite BS notion.
chronic fatigue / chronic pain / Fibromyalgia / Living fully / Spoonie Challenges / Writing journey

You must write every day—my favourite BS notion.

I have been trying so hard to stay out of social media arguments these days, stopping myself from reading or writing comments. Mostly because I find it comes to nothing in the end and drains my spoons. But then a thing happened this week I couldn’t ignore. A quote appeared on my Twitter timeline from … Continue reading

Dickie Boy and a Sense of Inevitability
Accessibility / chronic fatigue / chronic pain / Getting support / Spoonie Challenges / Writing journey

Dickie Boy and a Sense of Inevitability

I love genealogy, especially since I discovered my late father descended from English kings, including Richard III—although I did have to delete his father’s line in 2012 (see article from The Guardian). This is relevant because my father’s family includes a lot of people with scoliosis, just like Richard III, or as I call him now, … Continue reading

I’m Not F**king Brave
Author image / Body positivity / Cerebral Palsy / chronic fatigue / chronic pain / Living fully / Multiple Sclerosis / Represention / Spoonie Challenges / Writing journey

I’m Not F**king Brave

Just to set the record straight, I’m not brave, okay? I live with spastic cerebral palsy (CP) and relapse-and-remitting multiple sclerosis (MS). I can’t count the number of people who have called me brave. I always smile and nod when they say this, but the truth is that bravery has nothing to do with it. … Continue reading

How do you make *this* sexy? Why representation in fiction matters. (Part I)
Body positivity / Cerebral Palsy / chronic pain / Represention / sex / Sexah / Why Representation Matters

How do you make *this* sexy? Why representation in fiction matters. (Part I)

“How do you make this sexy?” a reader asked me, gesturing to her wheelchair in the middle of one of my sex education Q&A sessions. The question stumped me because the answer isn’t an easy one. The short version is: You don’t. There isn’t anything inherently sexy about using a wheelchair or a walker, or having … Continue reading