I’ve Zipped Through Gynecological Surgery
cancer / Living fully / Migraines / Spoonie Challenges / Writing journey

I’ve Zipped Through Gynecological Surgery

Okay, Susan, cut to the chase. For those of you who read my last post, Today’s Letter is “C”, you might remember that I’ve been spending way, way, way too much time visiting the gynecological oncologist and was heading in for a complete hysterectomy because there were some suspicious growths, particularly a neoplasm on my … Continue reading

Doing ‘It’ with a Disability
Cerebral Palsy / Multiple Sclerosis / sex / Sexah / Spoonie Challenges / Writing journey

Doing ‘It’ with a Disability

The first piece of writing advice that I was given was: Write what you know.   Throughout my twenty years as a writer, I’ve happily ignored that advice. I’ve written fantasy novels, horror stories, and countless short stories and poems. And throughout all of them, I wrote only what pleased me, what I felt called … Continue reading

Confessions of a Reluctant Spoonie
Autism / Fibromyalgia / Representing ourselves / Spoonie Challenges / Writing journey

Confessions of a Reluctant Spoonie

Forgive me, Father, for I have synonymed. Oh, wait, I’m not Catholic or Anglican (both traditions have the sacrament of Confession), I’m Jewish. So, that sort of confession isn’t appropriate. Yet, confession is an appropriate term for where I’m at with being a spoonie. The evidence is there in report cards and in what has … Continue reading

The ‘new’ me. Can I function in the world at my own snail’s pace?
chronic pain / Migraines / Spoonie Challenges / Working / Writing journey

The ‘new’ me. Can I function in the world at my own snail’s pace?

Let’s discuss tomorrow, today, and right now. Tomorrow I am going to take the first step towards getting some (very) part-time work by being interviewed at the local Vocational Rehabilitation office. Compared to the majority of the people they see, my Bachelor’s degree, my year of graduate school, various successful professions, and being a business … Continue reading