You must write every day—my favourite BS notion.
chronic fatigue / chronic pain / Fibromyalgia / Living fully / Spoonie Challenges / Writing journey

You must write every day—my favourite BS notion.

I have been trying so hard to stay out of social media arguments these days, stopping myself from reading or writing comments. Mostly because I find it comes to nothing in the end and drains my spoons. But then a thing happened this week I couldn’t ignore. A quote appeared on my Twitter timeline from … Continue reading

Dickie Boy and a Sense of Inevitability
Accessibility / chronic fatigue / chronic pain / Getting support / Spoonie Challenges / Writing journey

Dickie Boy and a Sense of Inevitability

I love genealogy, especially since I discovered my late father descended from English kings, including Richard III—although I did have to delete his father’s line in 2012 (see article from The Guardian). This is relevant because my father’s family includes a lot of people with scoliosis, just like Richard III, or as I call him now, … Continue reading

I’m Not F**king Brave
Author image / Body positivity / Cerebral Palsy / chronic fatigue / chronic pain / Living fully / Multiple Sclerosis / Represention / Spoonie Challenges / Writing journey

I’m Not F**king Brave

Just to set the record straight, I’m not brave, okay? I live with spastic cerebral palsy (CP) and relapse-and-remitting multiple sclerosis (MS). I can’t count the number of people who have called me brave. I always smile and nod when they say this, but the truth is that bravery has nothing to do with it. … Continue reading

How do you make *this* sexy? Why representation in fiction matters. (Part I)
Body positivity / Cerebral Palsy / chronic pain / Represention / sex / Sexah / Why Representation Matters

How do you make *this* sexy? Why representation in fiction matters. (Part I)

“How do you make this sexy?” a reader asked me, gesturing to her wheelchair in the middle of one of my sex education Q&A sessions. The question stumped me because the answer isn’t an easy one. The short version is: You don’t. There isn’t anything inherently sexy about using a wheelchair or a walker, or having … Continue reading

I’ve Zipped Through Gynecological Surgery
cancer / Living fully / Migraines / Spoonie Challenges / Writing journey

I’ve Zipped Through Gynecological Surgery

Okay, Susan, cut to the chase. For those of you who read my last post, Today’s Letter is “C”, you might remember that I’ve been spending way, way, way too much time visiting the gynecological oncologist and was heading in for a complete hysterectomy because there were some suspicious growths, particularly a neoplasm on my … Continue reading