Dickie Boy and a Sense of Inevitability
Accessibility / chronic fatigue / chronic pain / Getting support / Spoonie Challenges / Writing journey

Dickie Boy and a Sense of Inevitability

I love genealogy, especially since I discovered my late father descended from English kings, including Richard III—although I did have to delete his father’s line in 2012 (see article from The Guardian). This is relevant because my father’s family includes a lot of people with scoliosis, just like Richard III, or as I call him now, … Continue reading

I’m Not F**king Brave
Author image / Body positivity / Cerebral Palsy / chronic fatigue / chronic pain / Living fully / Multiple Sclerosis / Represention / Spoonie Challenges / Writing journey

I’m Not F**king Brave

Just to set the record straight, I’m not brave, okay? I live with spastic cerebral palsy (CP) and relapse-and-remitting multiple sclerosis (MS). I can’t count the number of people who have called me brave. I always smile and nod when they say this, but the truth is that bravery has nothing to do with it. … Continue reading

How do you make *this* sexy? Why representation in fiction matters.
Body positivity / Cerebral Palsy / chronic pain / Represention / sex / Sexah / Why Representation Matters

How do you make *this* sexy? Why representation in fiction matters.

“How do you make this sexy?” a reader asked me, gesturing to her wheelchair in the middle of one of my sex education Q&A sessions. The question stumped me because the answer isn’t an easy one. The short version is: You don’t. There isn’t anything inherently sexy about using a wheelchair or a walker, or having … Continue reading

I’ve Zipped Through Gynecological Surgery
cancer / Living fully / Migraines / Spoonie Challenges / Writing journey

I’ve Zipped Through Gynecological Surgery

Okay, Susan, cut to the chase. For those of you who read my last post, Today’s Letter is “C”, you might remember that I’ve been spending way, way, way too much time visiting the gynecological oncologist and was heading in for a complete hysterectomy because there were some suspicious growths, particularly a neoplasm on my … Continue reading

Doing ‘It’ with a Disability
Cerebral Palsy / Multiple Sclerosis / sex / Sexah / Spoonie Challenges / Writing journey

Doing ‘It’ with a Disability

The first piece of writing advice that I was given was: Write what you know.   Throughout my twenty years as a writer, I’ve happily ignored that advice. I’ve written fantasy novels, horror stories, and countless short stories and poems. And throughout all of them, I wrote only what pleased me, what I felt called … Continue reading

Confessions of a Reluctant Spoonie
Autism / Fibromyalgia / Represention / Spoonie Challenges / Writing journey

Confessions of a Reluctant Spoonie

Forgive me, Father, for I have synonymed. Oh, wait, I’m not Catholic or Anglican (both traditions have the sacrament of Confession), I’m Jewish. So, that sort of confession isn’t appropriate. Yet, confession is an appropriate term for where I’m at with being a spoonie. The evidence is there in report cards and in what has … Continue reading

The ‘new’ me. Can I function in the world at my own snail’s pace?
chronic pain / Migraines / Spoonie Challenges / Working / Writing journey

The ‘new’ me. Can I function in the world at my own snail’s pace?

Let’s discuss tomorrow, today, and right now. Tomorrow I am going to take the first step towards getting some (very) part-time work by being interviewed at the local Vocational Rehabilitation office. Compared to the majority of the people they see, my Bachelor’s degree, my year of graduate school, various successful professions, and being a business … Continue reading